How MAP Solved a Problem and Saved a Life

October 4, 2011 0 Comments

After meeting with you at the Ironman contest I felt that it was important that I relay some information regarding my grandson and his issue with Protein Losing Enteropathy (PLE), In his case this was associated with his congenital heart condition. He was born with no right ventricle. After many surgeries he developed PLE The physicians do not know why but this occurs with a lot of young patients that have had a surgery known as a Fontan Procedure. His Albumin levels got down to as low as 1.4 and the normal range for a low albumin level is 3.2. Needless to say he was in grave peril with levels that low.

Last year we met Dr. Minkoff at the Ironman race and were interested in seeing what could be done regarding increasing his albumin levels. He had been eating protein bars, a high level of meat and protein products with no avail. Dr. Minkoff stated that he should take 30 tablets a day of MAP, what I considered to be an excessive amount but was willing to try anything to see if we could get his levels up. Nothing had worked to date so we were desperate at trying anything. Prior to giving Michael this MAP tablet we had a conversation with his physician. His physician had the hospital pharmacy check the product out and stated that they felt it was ok and felt no harm would result in taking the pills. I felt they were tolerating the grandparents trying to find the cure for this condition and would overlook our stupidity. We are not health food people but eat very well, very little salt, lots of veggies and as much protein we could force down him on a daily basis.

After Michael took the pills on a regular basis the levels rose to as high as 2.7, which is incredible considering the fact that no matter what we tried his levels continue on a spiral and were heading for total shut down of his system. The 2.7 was the highest level of albumin he had in almost two years. Because he was a teen at the time he did not take them on a regular basis. So, it went up and down until he finally realized just how important this issue was. There is no placebo effect here because Michael had no idea at all why he was taking them except for the fact he needed more protein. As soon as he slacked off the pills his albumin went down. If you can believe this, his physician said, x93please take those pills on a regular basis, I don’t know why they work but they are doing the job that nothing else has done. By the way can you get me the address of this outfit so I can refer other patients to them?x94 That in itself says something about this product. He also stated he had never prescribed supplements prior to this but felt comfortable in doing so because he was so happy with the results.

This is not condemning our grandson’s doctor. He has been terrific but in typical fashion when it is not a prescription medication most MD’s do not trust anything other than prescription drugs. This is understandable but regretful because this product works so well.

All in all, we are so pleased that this product is available and that he is doing so well on it. I understand it is primarily for individuals that train for endurance races such as the Ironman, but please be aware that people with severe cardiac conditions are in need of this type of product to maintain a normal level of albumin just as an athlete needs to keep his or her protein levels up..

For this, I sincerely thank you and your organization for providing this product.

Once again, it was great seeing you again this year at the Ironman event.

Thanks,

Stan Smith